Nothing has been exaggerated, embellished, or fabricated; as you will
see, there was no need.
. .
. it is absolutely essential that the caregiver take some time for
him/herself. As the flight attendant says in the pre-flight
instructions, ‘Put on your own oxygen mask before helping others with
theirs.’
Then it was my turn. Yes, I was going to cut off my hair since Chris was
losing hers, and I must say that it was mildly frightening!
… I
noticed that all of my senses were heightened. We were holding hands and
her hand seemed warmer and softer, the air seemed crisper, the sky
darker, and the noises of the night seemed sharper.
Then Chris asked Dr. L the big question. “Am I going to die? Is this
going to kill me? If so, how long do I have?”
My
fantasy was that he would say something like, “Don’t be silly! Your case
isn’t that serious and I’m sure that you’ll be fine.”
He
didn’t.
It
absolutely broke my heart. I couldn’t hold her or comfort her; I
couldn’t even touch her because she was in the back seat. My eyes teared
up and I had to concentrate on driving, but I knew that I had to say
something to comfort her. Or did I? Everything that I considered saying
seemed hollow, empty, or just plain stupid. I was dying inside, not only
at hearing her so distressed, but also at the thought that she might
die.
…it
is imperative that you learn as much as you can as quickly as you can
in order to reduce your fear of the unknown. It is a classic example of
the adage “information is power” because the more we learned the less
apprehensive we were, even if what we learned was scary.
She
told me, “I look at this way:
on the roller coaster of life, I guess
it’s my turn to be in the front car. Bring it on!”
It
was a wonderful conversation in that
we each expressed our needs to the
other and asked for help and cooperation in doing what had to be done in
these difficult circumstances. This 10-minute discussion
made a tremendous difference in our relationship for the next nine
months, in that we gave each other “permission” to have faults and asked
each other for whatever we needed.
After the diagnosis, it quickly became evident that there was another
aspect of this situation that neither of us had anticipated: dealing
with other people and their reactions to the news that Chris had cancer.
…interacting with interested and concerned
people just goes with the territory.
They truly care so, in my view, it is important to include them. On the
other hand, it is difficult to keep everyone informed to their
satisfaction. My advice: either get someone else to help you, create an
email list and send them periodic updates yourself, or do it
electronically at www.CancerForTwo.com
The
cancer diagnosis is scary. The days and weeks immediately after it is
handed down are not the time to go hide in a corner;
the patient and partner must take an
aggressive stance and do everything they can to not only ensure that
they get the best
care, but that they get the
appropriate
care as well.
To
say we were impressed with the Revlon facility would be a gross
understatement. As soon as we walked in, we knew that we were in a
special place because there is very little about the Center that felt
‘medical’.
It just goes to show that you shouldn’t be afraid
to question
some of the rules; they may not be what they seem.
Then the big moment came when they whisked her off to the operating
room. We said our goodbyes and I told her I loved her. Through her fog,
she looked up at Georgia and said, “Take care of Dave.” Then she was
gone and I was crying like a baby.
“The only thing you need to worry about right now is recovering from
this surgery. The rest will happen when it happens.” I sounded much
braver that I felt.
By
the time I got to bed around 1:00 am, I found myself feeling extremely
depressed and discouraged. What was going to happen to Chris? How would
I be able to pay for everything when I didn’t have much time for work? I
didn’t even feel like working, and the projects I had been
excited about held no interest for me any more. It all just seemed so
hopeless. Above the din of all of those voices, I tried to remind myself
that I was tired and
everything seems worse when you’re tired.
So
we started singing loudly together and I emptied the rest of the fluid
into the cup without a problem. And we laughed about it.
With a little creativity, it is possible to turn something unpleasant
into something fun,
a technique we would use many times in the coming months.
In
order to effectively dry the ‘private areas’ I would scrunch the towel
up length-wise, place it between her legs with one end in front and one
in back, and then move the towel back and forth in a sawing motion. But
Chris insisted that I make a noise while I was “sawing” that sounded
like “VVVVOOOO-tah, VVVVOOOO-tah VVVVOOOO-tah!” We did that for every
shower and laughed every time. It just goes to show that if you can
put
some fun into something it’s no longer a chore.
Due
to my new-found shampooing, drying, and styling skills, Chris began to
refer to me as “Mr. Dave.”
Dealing with Chris was the easy part; she was in good spirits and we had
fun. Besides, I just loved looking at her. All of the other stuff
started to become a drag and I found myself sinking into despair at
least once a day.
Sometimes the best thing
you can do to help is to do nothing at all.
I’ll never forget that two-minute conversation. I feel that it was a
major moment in my life, mainly because of Dr. Brooks, her demeanor, and
her genuineness. Maybe it was just that I needed so much to hear what
she said to me, but I can still hear her voice in the phone as clearly
as I did that day.
My
gast had never been so flabbered. Talk about insensitive; what a thing
to say to someone with cancer!! She laughed about it later and we wrote
it off to semi-senility, but I think that down deep it bothered her just
a little.
I remember thinking,
“No matter how much I do, I just can’t protect her from everything.”
As
I thought about that one, I could feel the stress shrinking my body
inside my skin again,
so I told myself, “There’s nothing
you can do about that one, so don’t go there ‘til you get there.”
“You’ve been a good boob all these years,” she said. “I’m sorry this is
happening to you, but it’s not your fault.”
It
wasn’t long before they came and wheeled her away. … when that last door
closed behind her I completely broke down. I wasn’t really worried that
something bad would happen, it was just so horrible that she had to go
through all of this, she seemed so vulnerable, and it was just so damned
unfair. I leaned against the wall and sobbed uncontrollably.
In
the process of this excitement, her gown came down exposing the
dressings on her “new” breast and I yelled out, “Oh, my God! Your nipple
fell off!”
She
held up her wrist and we put our bracelets side by side and admired them
facetiously, cocking our heads in mock adoration of this wonderful bond
between us. It was so silly we laughed out loud and we were having fun,
despite the bizarre circumstance in which we found ourselves.
I
always enjoyed being around Chris and helping her, and those were the
high points of the day. But the chores and responsibilities were just
too much to think about and left me with no time to make any money; the
frustration level was, at times, unbearable.
We
looked at each other and laughed nervously at the situation in which we
found ourselves. Chris said, “Now listen, ‘Nurse Dave’. I don’t want you
to run screaming from the room until after it’s completely out!” That
helped to break the tension a bit.
I
experienced a feeling that I don’t recall ever having before; a
combination of relief, pride, renewed self-confidence, and that
incredible satisfaction knowing that I was taking good care of Chris. It
was quite a rush.
About half way home I guess I dozed off while driving because I was
startled by the horn blast of an eighteen-wheeler after I apparently
drifted over into his lane.
I felt like a complete
idiot. Of course she was right; what did I have to complain about? I was
ashamed of myself for even entertaining such feelings.
It
was surreal to be sitting there eating while Chris was getting her
chemo; all three of us were eating, talking, and laughing, having a
great time.
Although it was something I had always known, it reminded me of the
importance of having something to look forward to.
“I
don’t think my poison oak is poison oak after all. I just figured out
what it probably really is,” she told me with a dreadful tone in her
voice.
“Tell me.”
“Shingles.”
She
was so brave, hardly ever complained, continued to do as much as she
could around the house, and still had a pleasant attitude most of the
time in spite of the pain.
Chris . . . said that when she saw the women who had lost
their husbands,
had to raise children on their own, are financially strapped, and were
losing their homes, she realized that what she was going through was a
‘walk in the park.’
Although I
had already known this, it struck me as I was making that dinner that it
was very smart to make large meals, then refrigerate or freeze the
leftovers.
“Thank you for taking such good care of me. I don’t know
what I would have done without you.”
Suddenly, it was all worthwhile. I told her,
“Thank you for being a good and brave patient. You make it easy.”
It
was a good reminder for her that life does get back to normal and
that this ordeal will end.
As
you can see,
there is still life after chemotherapy and reconstructive surgery.
An
unpleasant but amusing image leapt into my mind of a bunch of bearded,
burly biker-types wearing leather vests standing around watching one of
their own tattooing color onto my wife’s nipple. I suppressed a laugh.
“How are they going to get ‘Momma Never Loved Me’ into such a small
area?” I asked, trying to make it sound like an innocent question. “I
guess they could make it a one-eyed eagle, couldn’t they?”
I
distinctly remember walking out of Loma Linda after the last treatment
with an incredible sense of satisfaction and accomplishment. I felt like
we had really accomplished something special together: Chris had fought
the battle of her life and I had helped her do it.
I
can tell you this without any reservations whatsoever: taking care of my
wife for these nine months was the most rewarding, uplifting,
satisfying, and meaningful thing I’ve ever done. My business suffered.
Our finances suffered. I endured a lot of stress and I did lot of
unpleasant things I never thought I’d have to do. But I would do it
again in a heartbeat, because this is what life is about. This is what
it is to be human.
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